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Marilyn O' Connor tells her story from the heart of living with Motor Neurone Disease. Living with a life changing diagnosis Motor Neurone Disease. No longer able to comb her hair , play guitar , lift her grandchildren. Please support Marilyn She fears loosing her hard earned independence Marilyn O' Connor tells this story from the heart. Despite the dark shadow above her Marilyn is planning a Charity Ball. "Dance While You Can" to raise funds for MND. She is the voice of women suffering from Motor Neurone Disease.